Support Group Activities

The FH Support Group has been developing steadily over the past 12 months. Some of the major achievements 2010 include the following:

• A donation pledge has been attracted from the Society of Ambulance Paramedic Students (SOAPS); the donation should take place towards the end of 2010 after the SOAPS have completed their fundraising activities.

• The FH PSG has assisted with the development of a nationally accepted model of care for the diagnosis and management of FH.

• Met with Maurice Swanson (Chief Executive of the WA branch of the National Heart Foundation), and he has offered support to the FH PSG; namely by raising awareness through their channels, and offering office space, phone line etc in their building if desired at some point in the future.

• Met with Michael Livingston (Director of HeartUK) who is now affiliated with the group. Michael has been providing guidance on the development of a national association for FH; the PSG would form an integral part of such an association.

Future events
Familial Hypercholesterolaemia Event: Meeting

MEETING
When: TBA
Time: 7:00pm – 8:00pm
Where: Oasis Lotteries House, 37 Hampden Rd Nedlands WA

All Welcome!
 
Interested in being on the committee? Have you a spare time to contribute towards the development and raising awareness about the support group and FH? We are seeking people living with FH to be part of this newly developing support group - the only one in Australia and New Zealand. All committee members belong to families living with FH.